|Your digestive system "on tubes!"|
|The tube goes down the nose, through the stomach, and into the small intestine.|
That's when she explained to me what "her gut" was telling her. She was beginning to suspect that Christopher was suffering from a very rare disease called Chronic Pseudo Obstruction Syndrome. I was thrilled to have a possible diagnosis. My next question was... what is that, and what do you do about it? She told me that it was a chronic condition where the GI tract isn't able to move food through the system. It can occur in any part of the GI tract and in any combination. It is unclear if it is due to problems with the muscles or nerves of the GI tract. There is NO cure. The treatment is to find a way to make him grow and live. She told me about a doctor in SanFrancisco who had the equipment and expertise to diagnose it.
|It is amazing how God made the human body!|
We made arrangements to fly to SanFrancisco to have the tests done on Christopher. Until her suspicions were confirmed, we would continue feeding him with the tube down his nose. It was the best we could do for now.
I tried to tell myself that this was good news. Maybe we were about to solve the mystery, but Chronic Pseudo Obstruction Syndrome didn't sound like a very fun diagnosis. Didn't she say there was no cure? I wondered what life would be like for him if that reallly was what was causing his tummy trouble. Did our child really have this rare disorder? Rare was probably not good in this case. I knew we were entering unchartered territory.
If you have never accepted Jesus Christ as your Lord and Savior, you can pray like this: